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The SPSRF Staff
Jun 28, 20244 min read
Voices of SPS: Steven Schartel
We, my wife and I, are grieving the loss of our planned lives and retirement. I miss my woodshop and mountain training runs. I am slowly, re
The SPSRF Staff
Jun 28, 20243 min read
Voices of SPS: Alison L.
Being able to go out for a short (very short) walk without my cane as well as playing with my 3 dogs!
The SPSRF Staff
Jun 28, 20246 min read
Voices of SPS: L.K.
I was busy pursuing the American dream, juggling a successful career in tech, traveling the country, meeting celebrities, and striving for p
The SPSRF Staff
Jun 28, 20241 min read
Voices of SPS: Jacqui Atkinson
From the city of Newcastle upon Tyne in England, Jacqui Atkinson spent six years struggling to understand the muscle spasms and chronic pain
The SPSRF Staff
Jun 28, 20241 min read
Voices of SPS: Shane James
In December 2020, Shane James will attempt to traverse, on foot, his native Tasmania and back ... 547mi/880km in all. Listen to Shane explai
The SPSRF Staff
Jun 28, 20241 min read
Voices of SPS: Joy Lwangu
Without SPS awareness in the medical community in Kenya, a lack of access to reliable insurance, and her own reluctance early on to undergo
The SPSRF Staff
Jun 28, 20241 min read
Voices of SPS: Meg Bayer
If there is anyone who knows how to navigate a rare disease, it’s Meg Bayer. I recently had the pleasure of connecting with Meg, an amazing
The SPSRF Staff
Jun 28, 20241 min read
Voices of SPS: Dr. Kelly Morgan
She had been a physician for 21 years and never heard of Stiff Person Syndrome, until she was diagnosed with it. Dr. Kelly Morgan faced tha
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