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Stiff Person Syndrome, Valerio: “My Luck? Having Found a Doctor Who Knows the Pathology”
For several months, I had difficulty putting on socks and shoes. I thought it was all due to my sedentary lifestyle, then, the spasms began.
The SPSRF Staff
Oct 7, 20246 min read
National Academies Report Calls for Faster Approval of Treatments for Rare Diseases
National Academies report highlights recommendations to accelerate the approval of rare disease treatments.
The SPSRF Staff
Sep 27, 20242 min read
CU Anschutz Receives $2 Million From the Céline Dion Foundation to Advance Autoimmune Neurologic Disorders Research.
Music superstar directs gift toward unraveling the mystery of Stiff Person Syndrome, other autoimmune neurologic diseases.
The SPSRF Staff
Jul 1, 20244 min read
The Stiff Person Syndrome Research Foundation Launches New Website
The SPSRF is proud to announce the launch of its newly redesigned website, which enhances our ability to share crucial information.
The SPSRF Staff
Jul 1, 20242 min read
The Stiff Person Syndrome Research Foundation Releases Comprehensive Financial Impact Report
This report outlines The SPSRF's financial practices, resource allocation, and strategic initiatives in detail.
The SPSRF Staff
Jul 1, 20241 min read
2024 SPS Symposium Wrap-Up
We're still buzzing from the energy of the 2024 Stiff Person Syndrome Symposium—a heartfelt thank you to each of you who joined us, both in
The SPSRF Staff
Jun 29, 20242 min read
Voices of SPS: Steven Schartel
We, my wife and I, are grieving the loss of our planned lives and retirement. I miss my woodshop and mountain training runs. I am slowly, re
The SPSRF Staff
Jun 28, 20244 min read
Voices of SPS: Alison L.
Being able to go out for a short (very short) walk without my cane as well as playing with my 3 dogs!
The SPSRF Staff
Jun 28, 20243 min read
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