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The SPSRF Staff
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Join date: May 15, 2024
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Mar 6, 2026 ∙ 3 min
2026 SPS Symposium - Event Details
The 2026 SPS Symposium will take place June 13–14, 2026, in Aurora, Colorado (Denver area) at the University of Colorado Anschutz Medical Campus, with a virtual attendance option available for those joining from around the world.
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Feb 24, 2026 ∙ 3 min
The SPSRF Newsletter - February 2026
The SPSRF 2026 Newsletter, highlighting the 2026 SPS Symposium, attendee details, our new head of development, and our podcast series.
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May 15, 2025 ∙ 7 min
Life with Stiff Person Syndrome
When Julie S. suddenly lost the ability to move her leg at a concert, she knew something was terribly wrong. What followed was a long, painful search for answers—until a rare diagnosis changed everything. In this honest and powerful account, Julie shares how Stiff Person Syndrome turned her life upside down—and how treatment, community, and resilience helped her find a new path forward. Read her story of strength, setbacks, and hope.
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