Frequently Asked Questions
You can attend the Symposium in person at the Sheraton Hartford Hotel at Bradley Airport in Windsor Locks, CT, or attend virtually through Zoom.
No. There is no registration fee to attend the 2025 SPS Symposium.
Yes, travel assistance is available through NORD here.
Download the full agenda here to see what’s in store.
No. There will be no on-site registration. You must pre-register to ensure we can accommodate everyone properly.
Please fly into Bradley International Airport (BDL). The Sheraton Hotel is attached to the airport and only a short walk from baggage claim.
DoubleTree by Hilton Hotel Bradley International Airport (1.5 miles from the event venue with a free shuttle available).
-
Rate: $179/night (plus taxes & fees)
-
Booking Deadline: June 20, 2025
-
Reservations:
-
DoubleTree by Hilton Hotel Reservations
-
Or call 860-627-5171 and request the 2025 Stiff Person Syndrome Symposium group rate
-
-
Transportation:
-
A free shuttle runs between the DoubleTree and the Sheraton Hotel (event venue).
-
-
Yes! Food will be provided on:
-
Saturday, July 19: Breakfast and lunch buffet
-
Sunday, July 20: Light breakfast and late-morning buffet brunch
-
A Zoom link will be emailed to all virtual attendees the day before the event.
If you are no longer able to attend in person (after registering), please let us know by emailing events@stiffperson.org.
Yes! The Symposium will be recorded, and the recording will be made available after the event.
We are happy to help! Please reach out to events@stiffperson.org.
This year, we are honored to welcome COMBINEDBrain to the Symposium.
COMBINEDBrain is a collaborative organization dedicated to accelerating the development of treatments for neurodevelopmental disorders. At the event, they will be collecting biological samples from SPS participants.
Why is this important? The development of effective therapies relies heavily on the availability of de-identified biological samples to help identify biomarkers—biological indicators that can aid in diagnosis, track disease progression, and measure responses to potential treatments.
For rare diseases like SPS, one of the biggest challenges in research is the limited access to patient samples.
The SPS Symposium will be the largest known gathering of individuals with SPS, creating a rare and powerful opportunity to make a real impact.
By contributing a sample, you are directly supporting future treatments and helping pave the way toward a cure. Join COMBINEDBrain's efforts and be part of this groundbreaking step forward in SPS research.
_docx_Page_1.jpg)
Registration is now open!
2025 SPS Symposium
July 19-20, Windsor Locks, CT & Online
Join us for the 2025 Stiff Person Syndrome (SPS) Symposium—an empowering two-day event dedicated to fostering connections, knowledge sharing, and bringing hope to those impacted by SPS.
The 2025 SPS Symposium offers a unique opportunity to connect with fellow patients, caregivers, and the top medical professionals in the field of SPS.
See the 2025 SPS Symposium agenda HERE
Registration for in-person and virtual attendees opens May 1, 2025!
Event Details:
-
Dates: July 19-20, 2025
-
Location: Windsor Locks, CT, with in-person and online participation options.
-
In-Person Event Venue: Sheraton Hartford Hotel at Bradley Airport (1 Bradley International Airport, Windsor Locks, CT 06096)
-
Overnight Accommodations for In-Person Attendees: DoubleTree by Hilton Hotel Hartford - Bradley Airport (16 Ella T. Grasso Turnpike, Windsor Locks, CT 06096-0020)
-
Discounted Hotel Rates: A discounted hotel rate is available here.
-
Registration: Register now as an in-person and virtual attendee.
-
Travel Assistance Grant: Travel assistance is available through NORD here.
-
The Symposium Agenda: Download the two-day agenda here.
Like last year, this year’s symposium will feature interactive sessions designed to deepen understanding and support for all participants.
What to Expect
Become a Sponsor of the 2025 SPS Symposium
Learn from leading experts in SPS research, treatment, and care. Topics will cover the latest advancements and practical approaches to managing SPS.
Connect with a global community of patients, caregivers, researchers, and advocates to share experiences and strategies in a supportive setting.
Gain insights from interactive Q&A sessions and discussions tailored to the unique challenges of living with and treating SPS.
Ask A Question
The 2025 SPS Symposium is your opportunity to have your questions addressed by leading researchers and medical professionals. While all submitted questions will be considered, limited time may prevent us from addressing every inquiry during the event. Submit your question for consideration by June 20.
Your voice matters—help shape the conversation and drive progress in SPS research!
