Become a monthly donor! You set the amount to give, and you can cancel anytime. For the same amount of effort as a one-time donation, a monthly donation provides a reliable source of support for The Stiff Person Syndrome Research Foundation. Monthly donations are easy, affordable, and more impactful.

In our first two years, we donated $90,000 raised for research to Johns Hopkins Stiff Person Syndrome Center. As of late 2022, the organization is focused on creating the SPS Global Registry & Natural History Study to facilitate research for better treatments and a cure. We remain committed to raising awareness of SPS, especially among primary care physicians and neurologists, to reduce the time to diagnosis and the suffering.

The Stiff Person Syndrome Research Foundation is a 501(c)3 nonprofit, tax-exempt organization designated by the Internal Revenue Code. When you contribute to The SPSRF, you will receive a charitable tax receipt for income tax purposes.

The Stiff Person Syndrome Research Foundation takes every precaution to protect our donor’s information. When you submit sensitive information via our website, your information is protected both on- and off-line. We use industry standard security protocols to keep you, and your information, safe.

To contact us, please email info@stiffperson.org.

The Stiff Person Syndrome Research Foundation is recognized as a tax-exempt charitable organization under section 501(c)3 of the Internal Revenue code. To claim a donation as a deduction on your United States taxes, please keep your email donation receipt as the official record of your donation. You will receive it via email upon successful completion of your donation. For reference, The SPSRF employer identification number (EIN) is 84-2291780.