The SPSRF Staff

The SPSRF 2026 Newsletter, highlighting the 2026 SPS Symposium, attendee details, our new head of development, and our podcast series.

When Julie S. suddenly lost the ability to move her leg at a concert, she knew something was terribly wrong. What followed was a long, painful search for answers—until a rare diagnosis changed everything. In this honest and powerful account, Julie shares how Stiff Person Syndrome turned her life upside down—and how treatment, community, and resilience helped her find a new path forward. Read her story of strength, setbacks, and hope.

We’ve been counting down to this moment—and we’re thrilled to share everything you need to know about the biggest event of the year for the SPS community.