In December 2020, Shane James will attempt to traverse, on foot, his native Tasmania and back ... 547mi/880km in all. Listen to Shane explai

Without SPS awareness in the medical community in Kenya, a lack of access to reliable insurance, and her own reluctance early on to undergo

If there is anyone who knows how to navigate a rare disease, it’s Meg Bayer. I recently had the pleasure of connecting with Meg, an amazing

She had been a physician for 21 years and never heard of Stiff Person Syndrome, until she was diagnosed with it. Dr. Kelly Morgan faced tha

The perplexing symptoms came in her mid-50’s: she couldn’t walk down stairs well, her legs felt heavy in the pool, she developed Type I diab

She calls herself “a bullhorn in stilettos.” A former model who was diagnosed with SPS in 2011, Tisha Foster recently published her memoir,

One year ago, SPS hit Darrell Cherry out of the blue and changed everything for him – and his wife, Erica – dramatically. For more than 30 y

“Focus on what you can do” says 34-year-old Alexandra Stamatopoulou, a Greek swimmer with SPS who won the bronze medal in the Women’s 50m ba