I was busy pursuing the American dream, juggling a successful career in tech, traveling the country, meeting celebrities, and striving for p

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In December 2020, Shane James will attempt to traverse, on foot, his native Tasmania and back ... 547mi/880km in all. Listen to Shane explai

Without SPS awareness in the medical community in Kenya, a lack of access to reliable insurance, and her own reluctance early on to undergo

If there is anyone who knows how to navigate a rare disease, it’s Meg Bayer. I recently had the pleasure of connecting with Meg, an amazing

She had been a physician for 21 years and never heard of Stiff Person Syndrome, until she was diagnosed with it. Dr. Kelly Morgan faced tha

The perplexing symptoms came in her mid-50’s: she couldn’t walk down stairs well, her legs felt heavy in the pool, she developed Type I diab

She calls herself “a bullhorn in stilettos.” A former model who was diagnosed with SPS in 2011, Tisha Foster recently published her memoir,