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The SPSRF Staff

Voices of SPS: Meg Bayer

If there is anyone who knows how to navigate a rare disease, it’s Meg Bayer. I recently had the pleasure of connecting with Meg, an amazing young woman diagnosed with SPS at 16 years old. Yes, kids get this disabling disease too. Despite a catastrophic seizure landing her in a coma for 10 days, Meg has continued not only to train in Tae Kwon Do, but also compete. All from her wheelchair! We share the same condition, and I’m sharing her story here because it is an inspiration.



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