National Academies Report Calls for Faster Approval of Treatments for Rare Diseases
National Academies report highlights recommendations to accelerate the approval of rare disease treatments.
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The SPSRF Staff
- Jul 1
- 4 min
CU Anschutz Receives $2 Million From the Céline Dion Foundation to Advance Autoimmune Neurologic Disorders Research.
Music superstar directs gift toward unraveling the mystery of Stiff Person Syndrome, other autoimmune neurologic diseases.
The SPSRF Staff
- Jul 1
- 2 min
The Stiff Person Syndrome Research Foundation Launches New Website
The SPSRF is proud to announce the launch of its newly redesigned website, which enhances our ability to share crucial information.
The SPSRF Staff
- Jul 1
- 1 min
The Stiff Person Syndrome Research Foundation Releases Comprehensive Financial Impact Report
This report outlines The SPSRF's financial practices, resource allocation, and strategic initiatives in detail.
The SPSRF Staff
- Jun 29
- 2 min
2024 SPS Symposium Wrap-Up
We're still buzzing from the energy of the 2024 Stiff Person Syndrome Symposium—a heartfelt thank you to each of you who joined us, both in
The SPSRF Staff
- Jun 28
- 4 min
Voices of SPS: Steven Schartel
We, my wife and I, are grieving the loss of our planned lives and retirement. I miss my woodshop and mountain training runs. I am slowly, re
The SPSRF Staff
- Jun 28
- 3 min
Voices of SPS: Alison L.
Being able to go out for a short (very short) walk without my cane as well as playing with my 3 dogs!
The SPSRF Staff
- Jun 28
- 6 min
Voices of SPS: L.K.
I was busy pursuing the American dream, juggling a successful career in tech, traveling the country, meeting celebrities, and striving for p
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