One year ago, SPS hit Darrell Cherry out of the blue and changed everything for him – and his wife, Erica – dramatically. For more than 30 y

“Focus on what you can do” says 34-year-old Alexandra Stamatopoulou, a Greek swimmer with SPS who won the bronze medal in the Women’s 50m ba

Now two years old, Isla was diagnosed with SPS at 18 months old, the youngest patient The SPSRF has ever encountered. Her great-aunt, Mary L

Joey calls himself a “medical unicorn,” a fantastically sarcastic way of saying he is extremely difficult to diagnose and treat, especially

Michael Weiss is a 19-year-old sophomore at the University of Michigan who was diagnosed with SPS at age 12 after a seven-month long hospita

Angela’s life began tragically. For years she suppressed emotional and physical pain. But after she was diagnosed with SPS, Angela became th

Three things stand out immediately about Lea’s story. First, she has scoured the world to find a diagnosis and treatment.

I feel like I’m not living a lie anymore. I feel I’m not second-guessing anymore. I also feel like I want go to all the neurologists that ha