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  • The SPSRF Staff

Voices of SPS: Shane James

The lowest point came on Christmas Eve when the pain from SPS was so great, Shane James wished he weren’t on this earth. The thought of his two children, asleep upstairs, expecting Santa and all his magic, snapped Shane out of it. What was left of that “fight or flight” moment was an inner desire to run. Even with his debilitating condition, Shane has run marathons, and ultramarathons. A documentary about his feats on foot says it all: Run To Live.


In 2020, Shane found Dr. Tara Zier and The Stiff Person Syndrome Research Foundation on Facebook. He was floored: he never imagined his condition would have worldwide recognition. It gave him hope, and even more energy to take on the run of his life, Traversing Tassie, to shine a light on SPS.



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