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  • The SPSRF Staff

2024 SPS Symposium Wrap-Up

Updated: Jul 1

What a Weekend!

We're still buzzing from the energy of the 2024 Stiff Person Syndrome Symposium—a heartfelt thank you to each of you who joined us, both in Windsor Locks and online. Your participation made this event not just possible but also incredibly impactful.


Couldn't Join Us?  Here's What We Covered

Day One was a journey of exploration:

  • Our opening presentation, "From Invisible to Invincible," by The SPSRF's Tara Zier, highlighted a self-care toolbox and how our Patient Registry will pave the way for groundbreaking research.

  • Dr. Scott Newsome took us through the past, present, and future of SPS research, illuminating the promising horizons we’re headed toward.

  • Moira Papp and Mollie Baumer shared their story about the power of friendship and their commitment to end SPS.

  • Stem Cell Transplants: Dr. Amanda Piquet discussed exciting advances opening new treatment pathways.

  • We dove into the Fundamentals of SPS with Dr. Duarte Machado, unpacking the science behind the syndrome.

  • The day wrapped with a vibrant Q&A session, where your curiosity shone through every question.


Day Two was all about connections:Our breakout session, "SPS - What’s in Your Toolbox?" offered a unique opportunity to exchange tips, stories, and support, reinforcing the power of community.



Here's What's Coming Up Next!

  • Attendee Feedback Survey - We want to hear from you! Be on the lookout for a survey landing in your inbox and social media pages soon. Your feedback is crucial in shaping our future events.

  • Video Records and Summaries - Missed Something? No Worries! We'll be sharing recordings and presentation materials in the upcoming weeks. Keep an eye on your emails and our social media pages for updates. 

  • Follow-up Questions - We’ve noted all your insightful questions asked during the presentation session and shared online. We're preparing detailed responses and will be sharing those in the coming weeks!


We have a wealth of information and inspiration coming your way. Don’t miss out!


Thank you to our symposium attendees! Your engagement and support fuels our mission to end Stiff Person Syndrome!


For more information and to explore videos and presentations, please visit https://www.stiffperson.org/2024-sps-symposium


 

For media inquiries, please contact:

Neil Mathis

Marketing and Communications

The Stiff Person Syndrome Research Foundation

 

About SPSRF

The Stiff Person Syndrome Research Foundation is dedicated to advancing research, raising awareness, and providing support for those affected by SPS. Our mission is to find a cure and improve the quality of life for patients through raising SPS awareness, funding SPS research, and providing community support and education.

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