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  • The SPSRF Staff

The Stiff Person Syndrome Research Foundation Releases Comprehensive Financial Impact Report

June 25, 2024, Bethesda, Maryland - The Stiff Person Syndrome Research Foundation (SPSRF) is proud to announce the release of our Comprehensive Financial Impact Report. This report provides a detailed account of our revenue, expenditures, and future initiatives, reaffirming our commitment to transparency and accountability.

"Our donors and supporters are the backbone of our mission. This report underscores our dedication to using every contribution effectively in the fight against SPS," said Tara Zier, President of SPSRF.

Camryn Wells, Director of Development at SPSRF, added, "We are dedicated to ensuring that our financial practices reflect our core values of integrity and responsibility. This report not only highlights our financial health but also our strategic vision for the future."

The report is available to view online:

Additionally, a video overview has been made available:


For media inquiries, please contact:

Neil Mathis

Marketing and Communications

The Stiff Person Syndrome Research Foundation



The Stiff Person Syndrome Research Foundation is dedicated to advancing research, raising awareness, and providing support for those affected by SPS. Our mission is to find a cure and improve the quality of life for patients through raising SPS awareness, funding SPS research, and providing community support and education.

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