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  • The SPSRF Staff

The Stiff Person Syndrome Research Foundation Launches New Website

July 1, 2024, Bethesda, Maryland - The Stiff Person Syndrome Research Foundation (The SPSRF) is proud to announce the launch of its newly redesigned website, aimed at enhancing our ability to share crucial information and resources with the medical community and the general public.

The new SPSRF website

"We are excited to introduce our new website, which represents a significant advancement in our mission to support and educate those affected by Stiff Person Syndrome," said Tara Zier, President of The SPSRF. "This platform allows us to deliver comprehensive resources more effectively and engage our community more flexibly."

The new website includes several key features:

  • Enhanced flexibility to incorporate new features and videos, promoting education about SPS.

  • Dedicated pages highlighting progress on major research initiatives, including the SPS International Patient Registry & Natural History Study and the Consensus on Stiff Person Syndrome Diagnostic Criteria Initiative.

  • A specialized section for academic research on SPS literature.

  • Access to videos and presentations from the 2024 SPS Symposium.

  • Availability of our comprehensive financial impact report.

  • Additional resources and tools for those looking to get involved with SPSRF.

Neil Mathis, Head of Communications at The SPSRF, commented, "Our new website is a cornerstone of our communication strategy, enabling us to provide critical information in a more accessible and user-friendly manner. It reflects our commitment to transparency and community engagement."

For more information and to explore the new website, please visit


For media inquiries, please contact:

Neil Mathis

Marketing and Communications

The Stiff Person Syndrome Research Foundation



The Stiff Person Syndrome Research Foundation is dedicated to advancing research, raising awareness, and providing support for those affected by SPS. Our mission is to find a cure and improve the quality of life for patients through raising SPS awareness, funding SPS research, and providing community support and education.

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