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Life with Stiff Person Syndrome
When Julie S. suddenly lost the ability to move her leg at a concert, she knew something was terribly wrong. What followed was a long, painful search for answers—until a rare diagnosis changed everything. In this honest and powerful account, Julie shares how Stiff Person Syndrome turned her life upside down—and how treatment, community, and resilience helped her find a new path forward. Read her story of strength, setbacks, and hope.
The SPSRF Staff
May 157 min read


The SPSRF Newsletter: November 2024
Here’s what’s happening in November at The Stiff Person Syndrome Research Foundation:
The SPSRF Staff
Nov 6, 20243 min read
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