When Julie S. suddenly lost the ability to move her leg at a concert, she knew something was terribly wrong. What followed was a long, painful search for answers—until a rare diagnosis changed everything. In this honest and powerful account, Julie shares how Stiff Person Syndrome turned her life upside down—and how treatment, community, and resilience helped her find a new path forward. Read her story of strength, setbacks, and hope.

Here’s what’s happening in November at The Stiff Person Syndrome Research Foundation:

For several months, I had difficulty putting on socks and shoes. I thought it was all due to my sedentary lifestyle, then, the spasms began.