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Support Resources

Welcome to our Support Resources page, where we spotlight services and resources from trusted partners.


Organizations such as NORD and Angel Flight Soars offer a wide range of assistance to help you navigate your journey with Stiff Person Syndrome. While these resources are not directly affiliated with The SPSRF, we believe they can provide critical support and information.


Explore the links below to learn more about the services available and how they can assist you. Visit often to discover new and updated resources from our partners.

NORD Care Giver Respite Program

The NORD Respite Program, designed for caregivers of a child or adult diagnosed with a rare disorder, provides financial assistance, which allows caregivers to attend a conference or event or simply spend some time away.

Financial assistance will be granted up to $250 biannually for those who qualify. Awards may be spread throughout the year or used for a single purpose. Awards are granted on a first-come, first-served basis to eligible individuals.

Note: Please note that The SPSRF is not associated with this program.


For more information, contact NORD by phone or email

NORD Rare Disease Educational Support

As a member organization of National Organization for Rare Disorders, Inc. (NORD), The SPSRF is pleased to share the information below with SPS-community members looking for additional educational support programs.


These courses are designed for those diagnosed with a rare disease and immediate family/caregivers.

Note: The SPSRF is NOT associated with these education courses in any way.


For additional information and a list of topics covered, contact NORD, RD Education Program, by email or phone

Angel Flight

ANGEL FLIGHT coordinates free air transportation for patients with medical conditions who cannot use or afford commercial airlines.

We serve all of Georgia, Alabama, Mississippi, the Carolinas, and Tennessee.


Anyone needing medical treatment who cannot use commercial transportation for financial or other reasons can request a mission flight.


Healthcare professionals and facilities can coordinate with us so that we can match volunteer private pilots with patients.


Our mission flights include frequent routine treatments, transplants, one-time operations, burn recovery and other compassionate needs. To find out if you qualify, click HERE or call 877-4-AN-ANGEL.

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