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Our Vision

We envision a world where all people with Stiff Person Syndrome receive a prompt diagnosis, compassionate care, effective treatments, and a cure.


We exist to raise awareness of Stiff Person Syndrome (SPS), to support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration.

Your Financial Impact

The Stiff Person Syndrome Research Foundation is committed to unwavering transparency and accountability, especially to our donors and supporters who enable us to pursue our vital mission.

This report outlines our financial practices, resource allocation, and strategic initiatives in detail, ensuring our donors and significant funding partners have a comprehensive understanding of our financial health and the impactful use of their generous contributions.

Watch the video overview below, or review the slide online at your own pace.  Click here to access the slides online.

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