National Academies Report Calls for Faster Approval of Treatments for Rare Diseases
National Academies report highlights recommendations to accelerate the approval of rare disease treatments.
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7 Years
On average, it takes 7 years to be diagnosed with SPS.
4-5 per 1MM
SPS affects 4-5 people out of a million.
Age 30-50
Age when symptoms most commonly develop.
5% of cases
Percentage of SPS cases reported in children.
Our Mission
The Stiff Person Syndrome Research Foundation envisions a world where all people with Stiff Person Syndrome (SPS) receive a prompt diagnosis, compassionate care, effective treatments, and a cure.
We exist to raise awareness of SPS and to support research for better treatments and a cure for SPS while strengthening our community through education and collaboration.
Providing Hope for SPS Patients
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Get Involved
Join us in making a difference in the lives of those affected by Stiff Person Syndrome. Your involvement, whether through volunteering, donating, or spreading awareness, plays a crucial role in advancing research and finding a cure.
Stiff Person Syndrome - In The News
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